Where I’m at #19

Where I'm At

*Costumes for our Asian*–*themed dinner party* 😆

“Where I’m at” posts are just updates about what’s going on in my life, based on the areas / roles in my life.

planner : Yeahhh. Mostly planning to not lose my shit as warmer weather approaches & life gets busy. 🤪 I gotta figure out a tea party for April, & then BooBoo’s birthday is at the beginning of May (she wants to invite her cute gymnastics coach, which I’m almost not opposed to LOL). And we’re late on bowling.
self (body & mind) : Well, the household got a second (though less intense) round of sickness, so…that sucked. Still working on getting back into my diet & exercise routines. Had my annual PCP visit, & she commended me on my 20lb weight loss since last year, so that’s cool hehe. My mind’s been a bit chaotic, but… I’m trying. I realized the other day that I’ve been confusing the word nihilism with hedonism (I knew nihilism wasn’t the right word, I just couldn’t think of the right one lol), so now I’m doing some research & formulating a possible future blog post lol – that might be fun 😆
marriage : Doing pretty good. We’re both sick of being sick. We’ve been enjoying Panera dates lately hehe 😋 Green Goddess salad & pomegranate hibiscus tea are personal faves right now!

mom (BooBoo & Bubby) : The girls are good. I actually am taking BooBoo out alone for a mini date today, to get her hair trimmed & I think she wants to go to Five Below & then get a Happy Meal. We’ll see lol. These kids are obsessed with Roblox (I would be too if I were their age lol) & roller skating around the house. We’ve been having fun playing with dolls & makeup – I taught them how to put lipstick kisses on paper hehe. Oh, BooBoo’s got glasses now; she says they make her smart lol 😊

homeschool teacher (1st grade & PK) : School’s going well. Bubby’s starting to get better with writing & letter recognition, & she can even “sight read” some words, which is great! BooBoo hates reading for no apparent reason, but her reading comprehension is definitely improving!
zenBLITZ : I’ve gotten SO behind on my posts, UGH! I haven’t had the time or energy to create much of anything lately, to be honest. Blargh. I’ll get back ahead of things pretty soon here. I hope.
homemaker (finance, cleaning, gardening, travel) : Yup. It’s fine. Whatever. 😂
(step) gramma : Chiquita Banana’s doing great! She’s such a happy, inquisitive little booger – it’s always a pleasure to see babies evolve, especially when you’re not seeing it all day every day because it’s easier to acknowledge from some perspective. She’s got 2 teeth now, she stands beautifully with minimal assistance, and she still loves the gingerbread man toy I got for her lol. She gets elated to see her Aunties BooBoo & Bubby, and they both love playing with her & feeding her. Too cute.

Currently

eating – Blueberry yogurt, at the moment lol. It’s officially salad season, now that it’s spring – so I think mushroom salad is in the plan for the week (pan fried mushrooms with a homemade balsamic vinaigrette)

drinking – Lotsa lime water. I quit drinking coffee & wine when I was sick, so now when I do drink them, they actually do their jobs LOL (kinda)

watching – Doom Patrol. Masked Singer. Suddenly Amish. I dunno…I can’t hardly pay attention to TV (so movies are definitely not my thing) – I always find myself too tired to be able to focus on shows. OH! The Scrubs reboot has really been rocking my socks though!! 🤩

reading – When You Read This by Mary Adkins – very interesting format, kind of enjoyable story so far

playing – The Sims Freeplay, mostly. I don’t know why I get so sucked in to this game, but it’s been an obsession on & off for like 15 years lol

buying – Too much, apparently. Well…I’ve behaved fairly well. Hubby, on the other hand, insisted we get a full size bounce house – he’s always wanted one, & we can afford to get it so…fuck it lol. He’s also trying to buy back “the Roger Rabbit car” he tried to buy when we were first together, but his friend ended up buying it (it’s a Bugatti-style golf cart that was actually used in the movie “Who Framed Roger Rabbit?”) Funny.

listening to – The Interrupters, at the moment

celebrating – SPRING! I can’t wait to be able to open & doors & windows & get some fresh air in the house, OMFG

pinning – leatherworking, sewing, “free spirit” images, journaling, & crochet

planning – Tea Party, BooBoo Bday party, bowling, sanity…

feeling – Ehhh. Hangin’ in there 😆

The Family Curse: Growing Up in the Shadow of ALS

Where I'm At

Yeah, so…I’m still fucking sick. Recovering, but much slower than I’d like. Lame. Please bear with my foggy brained rambling 😆💚

I decided to scrap my last “love” post for February. Cuz, well…I’m just not interested in it anymore!

This month (ironically), I’m planning a few “health” related posts.

Not at all like “how to be healthy” posts.

More like…this is some shit I’m dealing with, or have dealt with in the past, posts.

It’s been in my neverending collection of stuff I wanna post about eventually, so…here we go! 😉

*“Holding Hope”* – Image created with Gemini

Some families pass down heirlooms.

Some pass down traditions.

Mine passed down ALS.

And if the pattern in my family holds, there’s a chance the story isn’t finished with me.

The Family Curse

A few months back, I wrote a little bit about my teenage experience as a caregiver for my mother after her ALS diagnosis, & the personal fallout after she’d passed away (ALS, Grief, and Growing Up Too Fast: What October Means to Me).

For those who don’t know, ALS runs heavily in my mother’s family. To the point where our genes are sought for study. It’s pretty scary.

Let me map out some of what little I actually know :

It comes from my mom’s dad’s family, traceable back as far as the late 1800’s when it was referred to as “creeping paralysis”.
My mom was the oldest of four girls, the middle two were twins : The youngest doesn’t carry the gene; the other three passed away, all from ALS, at around the ages of 35, 45, & 55.
The three sisters had a total of six kids between them, myself included. Out of those six, three have already passed away from ALS, most recently about two years ago now. I haven’t been tested for the gene, but my remaining cousins were & they do carry it.
Here’s two of many stories about about a couple of my cousins :
- Dying Mom Leaves Legacy of Wisdom
- New York Bill Named for Beloved Coach Seeks to End Genetic Insurance Discrimination

Existential Crisis

My odds probably aren’t great. But as long as I don’t get tested, there’s still a strange kind of hope in the uncertainty.

However, one of those remaining cousins was recently diagnosed with ALS. She’s only a couple years older than me, so…cue the amplified existential crisis.

I’m tired of being so rudely reminded of my mortality, as I’m sure were all of my ancestors before me.

I’m tired of all this grief, and fear.

That possible genetic time bomb has been ticking a little too loudly in my ear lately…

And I resent the fact that my family isn’t as close as it should be. It’s always been kind of sickening to me, because we all know that’s not the way it should be.

Shitty Instincts

For some reason, hearing this news makes me want to reach out to my old friend even more. (If you’ve been around a while, you’ve heard me mention him. And you may have heard me mention that I’ve tried reaching out to him, to no avail.)

Why.

Because I don’t wanna go out without resolution. Such unresolved tension. Especially since there’s no good reason for it in the first place.

And because I want his support; because sometimes he could be the most enlightening perspective in my life.

He was around when I first started learning more about the tragedy surrounding this gene, and he said to me one day, “seems you already count yourself among the dead”. Which wasn’t any more true then than it is now…

No One Makes It Out Alive

I don’t consider myself among the dead.

I consider myself among the cursed.

Cursed with immense loss & fear ingrained in my genetic code.

Cursed with being faced with the harshest of realities, such as the fact that no one’s there when all is done – ”In the end, you’re measured by how you treat the people closest to you“ – Ryan Holiday.

Cursed with shitty genes & a constant reminder of how short life can be.

But also immensely blessed with a sense of urgency that most people don’t realize until it’s too late. If they even get the chance.

All I can do is love my family, keep trying to live vibrantly, and keep trying to help others.

“Life is long, if you know how to use it” – Seneca

Celebrate life. Honor your ancestors.

If ALS has touched your family too, you already know the strange mix of grief, fear, and urgency that comes with it.

If you’re able, consider supporting ALS research – or simply reach out to someone you love today. None of us are promised tomorrow.

Click here to learn more about ALS or to donate toward finding a cure 👉 ALS Association

Stay real. Stay loud. And rock the fuck on. 💚🤘🏻

Where I’m at #18

Where I'm At

Quick note : Hi there! I do have another post I’m trying to write to go along with the “unusual” love posts I’ve shared this past month, but I have been sick as fuck. Like…fuuuck! And so has everyone else in my home. So, I’ve fallen a bit behind. I’ll try to get that out next week, pinky swear 😉

In the meantime….

“Where I’m At” posts are just random updates about what’s going on in my life, based on the areas / roles in my life.

planner : Yeah, I don’t know. I’m so thrown off right now, its not even funny. I’ll get back on track soon though. I’d like to plan some sort of family fun next month, be it bowling or a hotel visit, but we’ll see how everyone’s health goes, I suppose.
self (body & mind, emotion & education) : Bleh! I’m…less sick; but I have some surprising health concerns since I started getting sick, which I’m looking further into. And since getting sick, my diet & exercise…didn’t get put on the back burner, it got thrown right off the stove 🤪 So, I’m slowly working my way back into routines. My brain’s doing pretty good though, considering and despite almost crippling anxiety over said health surprises. Workin’ on it…lol
marriage : Things are good. We take good care of each other and the kiddos, so I’m perpetually grateful for that.
mom (BooBoo & Bubby) : The girls are good. Bubby kicked BooBoo in the face & now one of her teeth are a tiny bit loose, but I’m hoping it’ll resituate itself (omg please!!!!!) (Dentist visit coming ASAP, FML!) (Is this what it’s like having siblings? Cuz I didn’t have any. LOL UGH). Just found out both girls have astigmatism, & BooBoo’s been complaining of headaches lately – so, assuming they’re not just from her sister kicking her in the face, we’re working on getting her glasses this week. And both girls keep getting crazy tummy sickness randomly – they’ll be fine for a couple days, & then in hell for a day (I’m glad whatever this bug is affects me & hubby differently than them, geez!) Otherwise…the girls are doing great!!! 😅

*Yes, there’s a bounce house in my living room occasionally.* *That blur is BooBoo.*

homeschool teacher (1st grade & PK) : Due to sickness, school has been a little inconsistent. Still plowing through as best we can. BooBoo loves geography lately, and math. And Bubby’s gymnastics coaches are ready to throw her into the next level of classes because her skills are way too far beyond the level she’s forced into right now. She’s still enjoying it though 😊 Oh, AND she made a FRIEND!!! YAY!!!
zenBLITZ : As with diet & exercise, creativity has pretty much been thrown right off the stove the past couple weeks. I haven’t felt enough clarity to write, even when I try; and I haven’t had the energy to work on much else, though I did complete a couple of cool projects earlier this month (& I love them!!!) :

*Completely handmade veg tan leather A6 “Traveler’s Notebook” cover (…I always fuck up the “B”! Ugh!)*

homemaker (finance, cleaning, gardening, prepping, travel) : Pfft! Everything’s fine, but… 😝 I had to cancel our annual crockpot party due to everyone feeling like death was upon them, so… Next month I’m planning to host an “Asian” themed dinner potluck – I’m thinking I’m gonna get some saki, sushi, order some unique snacks from Amazon, bust out all my cool chopsticks & nifty dinnerware from Wegmans, and bribe someone to pick up a couple meals from Taste of China (the best damn Chinese food I’ve ever had in my life!) So help me god, I don’t even care who’s sick, we’re having that party! 😆
(step) gramma : A new feature that I figured I’d add, because it’s proving to be a pretty important part of my life 🥰 – my step granddaughter!! We babysit her fairly often, & we love every second of it! She’s just over 6 months old now, & she’s very smiley & giggly & precious hehe. Both girls absolutely adore her, and BooBoo gets quite the kick out of making her giggle & feeding her her bottle.

Currently

eating – Not much cuz FML I’m so sick of being sick…wah wah wah… 😂

drinking – Water. And tea. That’s about it. I haven’t even been drinking coffee (am I dying?!? LOL)

watching – YouTube. Lots & lots of YouTube.

reading – Still working on “The History of Love” by Nicole Krauss

playing – The Sims. Bubby got me back into The Sims Freeplay on my phone. I don’t know why I get so obsessed.

buying – Oh boy. Hubby’s been on a bit of a spree this month. (I’ve been behaving, for the most part.) First, he made me buy a 6 foot bouncey ball from Vat19.com. Now he wants me to finally get him a pirate ship bounce house / water slide thing (which I’m not opposed to because he’s wanted one since before we even met, plus it’ll be fun in the summer, especially at parties.) And NOW he also wants to buy back the Roger Rabbit golf cart car his friend bought out from under him when we first got engaged. So, brace yourself for some interesting pictures this summer 🤣

listening to – Heaters. I’ve very much been enjoying as much peace & quiet as I can possibly get lately lol

celebrating – Life. That’s the best thing to celebrate. Especially despite the chaos of the world.

pinning – leatherworking, steampunk aesthetics, self care, & crochet

planning – Asian dinner party, potential adventure

feeling – 🤒 but (trying to be) optimistic

💚

Where I’m at #14

Where I'm At

*Found a lot of Halloween fun this year hehe*

“Where I’m at” posts are just random updates about what’s going on, based on the areas / roles in my life.

planner : Trying not to plan too much this month lol! I do need to figure out what we’re doing for Turkey Day though – not sure if my step daughter wants to come over or if she wants us to go over there…or if she wants us to piss off for that matter LOL. I always do ham, sausage stuffing, green bean casserole, & homemade mashed potatoes with homemade gravy…that’s all I care about 😜 (well, she does the casserole, & certainly better than I ever could! hehe)
self (body & mind, emotion & education) : Ugh. Struggling a bit – “Chaos” has returned, & I’m certainly not recovered from the last round of it. Weight loss has slowed a bit because it’s hearty meal season and we’ve been too busy for me to stick to my exercise routine as strictly as I’ve been – I’ll figure it out though. When all else fails, prioritize self care! Oh, and we’ve all caught a cold. Shocker. 🤪
marriage : This is the “chaos”; nobody’s fault though, just a bit of a struggle. We’re working on figuring it out.
mom (BooBoo & Bubby) : The girls are doing well! Except Bubby threw Booboo’s tablet at her the other night & cut a little gash in her forehead (for someone who worked in an ER, I have an extremely low tolerance for blood…especially if it’s seeping from one of my precious little spawn LOL) – It bled quite a little bit, but it wasn’t anything that would require stitches. Bubby still feels really bad & has been catering to Booboo’s every whim LOL
homeschool teacher (1st grade & PK) : School’s going well. Booboo’s progressing on pace; she gets super frustrated sometimes, but she understands everything just fine. She’s just…me, LOL. I’ve still gotta figure out how to fit in Playing Preschool year 2 for Bubby, especially since we’re nearing the end of Easy Peasy PreK, & she’s still a little “behind”. Which is fine! She actually understands Booboo’s level of math quite a bit, which is impressive!! 😊
zenBLITZ : Hopefully I can get my head straight enough to write up some good posts soon! And work on my novella! The past month though, I crocheted a Barbie blanket for a practice project, & started a massive baby blanket for my step granddaughter hehehe ❤️
homemaker (finance, cleaning, gardening, prepping, travel) : Yeah, whatever. LOL

Currently

eating – Soups!! Most recently : my magic chicken soup, Italian sausage soup, & cabbage roll soup 🍲 😋

drinking – Barefoot Pinot Grigio (why?!?), Flora Adora Gin lemonade cocktails (whyyy?!? LOL) 🍸

watching – Game shows. I love me some 1% Club & The Floor hehe

reading – The Last Time They Met by Anita Shreve. Have I mentioned this yet? It was on the library “discard” shelf, & it sounded kind of interesting, so I thought I’d save it from the recycling bin. I’ve enjoyed it so far (I’m only about 1/4 the way through), though it is a bit slow & dry…LOL.

playing – Nothing, really. Though I ordered the original Tomb Raider for hubby, & it should be coming today. So maybe I’ll be playing that a little bit. I’d probably rather play Fable though heh

buying – Xmas gifts. And bday gifts for hubby & Bubby. Never too early to stock up!

listening to – Foxboro Hot Tubs at the moment 🤩🎸

celebrating – Thanksgiving?

pinning – tattoo inspo, pretty seasonal backgrounds, & crochet

planning – to keep my shit together lol

feeling – Kinda BLAH!

Where are you at? Let’s chat in the comments!! 💚

Rock on! 🤘🏻

Where I’m at #13

Where I'm At

“Where I’m at” posts are just updates about what’s going on in my life, based on the areas / roles in my life.

planner : Halloween fun is coming up! Trunk or Treat, pumpkin farm, and so on. Hopefully. My birthday’s coming up too – I’d really like to get some tattoos (hubby’s not too pleased about it, but I don’t care lol.) (My goal as a kid was to get a tattoo every year for my birthday. I went poor before I even hit 21, so I’ve got some making up to do lol!)
self (body & mind, emotion & education) : Egh… I’ve lost almost 20 pounds so far, so I’m pretty excited about that!!! I look & feel a lot better than I did at the beginning of the year, so that’s something to be proud of! Allergy season has been pretty hellish, as usual. Mentally, I’m still struggling a bit. Lots going on in my life, and in my mind in general. But I’m doing ok. I noticed that, for me, generalized depression & anxiety are 2 sides of the same coin, meaning that while one side is facing up, the other is still there – as a kid, depression was face up; in my 20’s and 30’s, it was anxiety (which I find easier to deal with most of the time); and starting this year, I’m finding it’s flipped to depression again. It’s ok though – lots of self care & I’ll manage just fine.
marriage : Things are ok. Little bit of a rough patch this month due to stress getting the best of us, but “endure, and keep yourselves for times of happiness”, and we’re gradually doing better.
mom (BooBoo & Bubby) : The girls are good. We’ll be switching BooBoo back to gymnastics, per her request; I think she’ll benefit a lot more from it than she was doing at the dojo she’d been attending for karate. Bubby’s excited that she’ll be able to practice techniques with her more, since they’ll be learning similar things.
homeschool teacher (1st grade & PK) : Well, my original IHIP for BooBoo wasn’t accepted because it apparently wasn’t detailed enough, but the revised version was all good, so…yay! She’s loving school (even though she inevitably gives me a hard time during classes heh!) Bubby’s getting more interested in learning to read, and she’s picking up on a lot of new things, so that’s awesome. She was even working on subtraction problems in a Kindergarten workbook we have, which is super awesome!!! 🥲
zenBLITZ : Still loving my blog. I’m enjoying writing about whatever’s been on my mind, and I’m enjoying working on my fiction (ish) novella when I can. Social media sucks balls though!!! 😂
homemaker (finance, cleaning, gardening, prepping, travel) : All good. Well enough, I should say. I’m already thoroughly enjoying soup season hehehe!

Currently

eating – SOUP!! 😋

drinking – Barefoot Zinfandel, warm lemon water

watching – I haven’t really been into too many shows lately. Twisted Metal & You are still favorites. I like Joel McHale as the host of the 1% Club, and I absolutely loathe Martin Short as host of Match Game (come back, Alec!! 😭)

reading – “The Last Time They Met”, by Anita Shreve (it’s a little dry so far). Finished “One Italian Summer” last month – it was good, kinda interesting premise, but a bit too drawn out for me to ever want to read it again lol

playing – Nothing, really

buying – Everything in Spirit Halloween LOL

listening to – At this particular second, “21 Guns” by Green Day

celebrating – My birthday, I guess 😅, Halloween

pinning – “Free Spirit”, “Funny Shit”, & “Food”

planning – On getting some tattoos and maybe going to the casino buffet for my birthday

feeling – Egh. Whatever. lol

Where I’m At #2

Where I'm At

“Where I’m at” posts are just random updates about what’s going on in my life at any random time, based on the areas / roles in my life. Any particular goals I’m working on will be highlighted, so you can easily see what I’m actively working on improving (and see that I do try to practice what I preach). Leave a comment & give me ideas for topics you’d like to see posts about!

planner : I keep toying with the idea of analog planners, but they’re so impractical for me right now! I miss my Happy Planner & my bullet journal, but everything’s still working so well for me on Notion that it doesn’t make sense to fix something that isn’t broken! I did create a horizontal weekly layout with a memo section for my mini Happy Planner, but I mostly use it to get a focused overview of my appointments, goals, & meals for the week. I guess it helps gain some perspective.
self (body & mind, emotion & education) : Not much going on here, except for with my diet. I’m trying to follow a “mindful eating schedule” I created with ChatGPT. I like it a lot so far, but I have some trouble with tired / stress eating around dinner time. For example, I may have eaten too many brownies this evening & kinda wanna crawl into a hole right now lol oops. Progress, not perfection – I will try not to do that again tomorrow!
marriage (relationship & libido) ; Going pretty good. I’ve been enjoying working on improving my libido, and working with sexual energy more in my life. Hubby’s enjoying the journey too lol! Next week I will try out the “Radical Intimacy” course on DailyOm, and I’ll let you know how it goes
mom (BooBoo & Bubby) : The little monsters are good. BooBoo is starting to read like a pro, and Bubby still loves her dolls. Both girls want Furbits for Xmas (😱)
teacher (K & PK) : School has been going pretty well. I love ChatGPT for helping me with ideas for lesson plans!
zB : I’ve been enjoying my writing journey quite a bit, and I’m learning a lot! I love it!!
homemaker (finance, cleaning, gardening, prepping, travel) : Still gotta plan a little family cabin trip. Hopefully I can get that situated this week. Working on a cool “Friendsgiving” party for this month (charcuterie board & board / card games), and a chill family Thanksgiving dinner.
witch : Nothing going on here. I celebrated Samhain with a day full of journaling though, which was very much needed.
reseller : BLAH! Still mad at resale, still haven’t done anything about it.

Currently

eating : Brownies lol

drinking : Rosé, lime water, coffee with pumpkin spice creamer & occasionally a shot of Trader Vic’s Macadamia Nut Liqueur 😋

watching : Outer Banks, Nobody Wants This, Agatha All Along (OMG I love it lol)

reading : Good Morning Good Life by Amy Landino

playing : Bingo Showdown & Candy Crush Saga

buying : Nothing, so help me god

listening to : Green Day, Reverend Horton Heat, Lofi, other stuff my family members hate LOL (though I did sing Barbie Girl in the car with BooBoo the one day, that was pretty cool hehehe ☺️)

celebrating : the rest & reflection time of year nearing

pinning : self care, Green Day, planners, Xmas, crochet

planning : Thanksgiving & Friendsgiving

feeling : tired! Hopeful, stressed

Where are you at? Let’s chat in the comments!!!